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WILLOW'S STORY
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ABOUT IGI

ABOUT IGI

IGI is the life-sized version of the IGI Therapeutic Play Doll, part of Shire's Primary Immunodeficiency (PI) Therapeutic Play Kit. IGI first appeared at a 2011 conference and has since lifted kids' spirits during tough times because—like them—he has PI.

The Play Kit helps families living with PI learn how to better cope with the medical world through therapeutic play. To order Shire's PI Therapeutic Play Kit, call 855‑250‑5111.

Watch IGI inspirational stories!

IGI INSPIRATIONAL STORIES

IGI INSPIRATIONAL STORIES

Willow

WILLOW

Willow Rose is four years old and loves princesses, glitter, and anything that sparkles. But she's never been able to go to a party. On a warm, sunny November day, decked out in a blue princess dress and a pink tiara, she got her wish.

Surrounded by her toys, and joined by her own bandaged and well-loved doll, the life-size IGI escorted Willow to her very own princess tea party. They blew bubbles, dined on cupcakes, and rode around on toy train cars. “It was amazing to see Willow get to have a party and see all of this attention on her for a good reason,” her mom said.

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Click to view Addie's Story Click to view Louisa's Story Click to view Ezra's Story
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Addie was diagnosed with primary immunodeficiency (PI) when she was very young, and the Therapeutic Play Kit came to her just in time for her first intravenous immunoglobulin (IVIG) infusion. To help her understand what she was going through, Addie’s nurse taught her how to give IGI an infusion at the same time Addie received her IVIG treatment. Since then Addie and IGI have been inseparable. Watch how a surprise classroom visit from the real-life IGI put a huge smile on Addie’s face!

During their time together, IGI danced and played with Addie and her sisters as their mom watched the unforgettable afternoon unfold. “IGI has helped Addie out a lot and is a big part of her life,” her mom explained.

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IGI has always been Louisa's special friend. When little five-year-old Louisa met the real-life IGI, at her dance class studio, she was overcome with joy and gave him a big hug!

Louisa spent the entire day dancing and playing with IGI. Louisa’s family was deeply touched and moved. Using the therapeutic play kit she told IGI that he made her brave and that her IGI doll, whom she calls "IV bear" was her sidekick during her infusions.

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At only five years old Ezra's rare Primary Immunodeficiency has required countless treatments, hospital stays, and two stem cell transplants—all leading to a worldwide search for a matching donor. Through it all, with his parents by his side, he’s also had his faithful companion, his IGI doll, whom he calls Ivig. After years of sharing his experiences with his best buddy Ivig, Ezra wanted—more than anything—a visit from IGI.

One afternoon, IGI surprised Ezra at his home and spent hours playing with him. From racing cars, to building space ships, IGI brought amazing smiles to Ezra’s face! It was one of the happiest and most joyful times for Ezra and his entire family. The love between Ezra and IGI inspired Shire to try to meet the wishes of other children across the U.S. who hope for a visit from IGI. Now you can have that opportunity. Enter today for a chance to have IGI come visit you and your child in your hometown!

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Learn more about MyIgSource

Living with primary immunodeficiency (PI) isn't always easy, but it's important to remember that you are not alone.

Our comprehensive patient support program can help. By providing complimentary support, resources and information for people living with PI and their caregivers, our program can help you along your journey. What’s more, the Patient Support Program is open to all patients and caregivers regardless of treatment.

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Call 855-250-5111 or visit myigsource.com to enroll.


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